Compreensão do cotidiano dos cuidadores familiares de neonatos e crianças que vivenciam o processo de hospitalização em uma unidade de terapia intensiva

Abstract

The hospitalization in high complexity unit, like the case of a Intensive Care Unit (ICU), paediatric or neonatal, besides its character of service to critical patient, conceptualize itself as an inexpected attendance to the family caregivers involving feelings like distress sudden changes in family daily life. This fact, brought to light the necessity to comprehend the experience of the family caregiver as care agent.This paper is focus on a qualitative approach using Grounded Theory. The present essay is based in 10 neonatal/paediatric ICU family caregiver recorded interview about their comprehension of the day-to-day life in ICU in a hospital in Santa Catarina’s Western. Results allow to identify a central category named “Bem… era uma vez… mentira…” arising from one of the family caregivers interview, whose express the experience a home environment and it changes drastically after the newborn or children hospital stay causing distress, anxiety, fear, paper changes, other feelings and family and personal reorganization. The two others categories which guides the research, titled “A espiritualidade como força para superar a hospitalização” and “Uma nova perspectiva do cuidado de si e do outro”. It emphasize the process that pervades the experience of life, revelation diagnosis and the resilience process due this rupture with the previous routine and all the obstacles during the hospitalization. Concluding, it can be pointed the importance of a multiprofessional approach besides de technologic and patient centred, but the holistic sight in care and giving the real importance to the social netting around them.